Collaborative Home Care for Alzheimer’s Families
Family caregivers for someone with Alzheimer’s disease have a long and often exhilarating and heartbreaking journey ahead of them. The ‘visit me now’ moments alternate with challenging behavior, fast-growing needs for care, and seemingly insatiable patience for responding to the same question or demand 150 times per day. For many family members, a primary task is therefore to build a good support network for providing Alzheimer’s care over the years of the progressive disease. Collaborative home care is an approach that can facilitate this process, by integrating formal and informal resources and offering family caregivers help to create a good quality of life both for the person with Alzheimer’s and for themselves. This article will describe several ideas that might help to create and sustain a support network for Alzheimer’s families providing the best possible care. Understanding the Need for a Supportive Network Alzheimer’s disease doesn’t just affect the diagnosed person, it impacts their entire family. Caring for the person, balancing medical treatment and daily living needs (eg, dressing, eating, taking medications), and tackling the emotions surrounding the disease is a complicated task, and having a support network can help: Building a Supportive Network Creating an effective supportive network involves several key steps: Involve Family Members Engage Professional Caregivers Utilize Community Resources Foster Communication and Coordination Overcoming Challenges in Collaborative Care While building a support network can have many benefits, it can also come with struggles. The following is a list of common problems related to building a support network and suggested ways to deal with them. Family Conflicts Caregiver Burnout Coordination Issues Financial and Logistical Concerns Benefits of a Supportive Network A well-established supportive network provides numerous benefits for Alzheimer’s families: If we truly wish to avoid the scenarios described above – to provide effective, dignified care to our loved ones – a point person must develop a network of support, including (when possible) the loved one’s family, paid care workers, their community, and the person living with the disease. Communication needs to be encouraged and accomplished between and among all involved parties if we wish to successfully care for those living with Alzheimer’s disease. To begin with, deal with some of the more typical issues and make sure to take advantage of the benefits offered by support groups. Recognizing that caregiving is in constant flux—and that there will be both good days and bad—is one of the best ways families can keep it sustainable. Ultimately, caregiving for Alzheimer’s disease is about being loving and attentive through all the ups and downs. With perseverance and compassion, most families can keep the patient at ‘home’, providing good care, and working to keep the family intact as much as possible.
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